I am often asked by those close to me why I research and talk about gluten so much. Can’t I just “get over it” and move on with my life? Why does everything always have to be about gluten?
I received the most heartwarming email the other day from one of my readers who summed it up perfectly as to why we do what we do and she has given me permission to share her email on my blog. And by “we,” I mean every one of us in the gluten-free community who takes the time to share our personal experiences with others, be it on a blog, Facebook or Twitter, in a support group or over coffee with a friend. It matters.
I wanted to let you know you literally saved my life. Your blog is the single reason I figured out my own illness that I battled for 14 years. Thank you for sharing all your extensive research, knowledge and links to scientific documentation.
My celiac test was negative in 2006 so I never (nor did my very closed minded doctor) expected gluten could be the cause of what appeared to be a 14 year stomach flu (basically every single classic celiac symptom). My next appointment was with Mayo Clinic in Rochester, MN before I found your blog in November 2010 and realized my blood test could be wrong and/or I could be gluten intolerant. I immediately put myself on a strict GF diet and by day 2, knew you had found the answer for me! Although I will never truly know if I am celiac or not as I will never eat gluten again in order to have a biopsy done. I did get tested through Enterolab and found out that I was positive for gluten and dairy antibodies with genetic DQ 2,1 (subtype 2,6).
When I mean you saved my life you did. I had severe nausea all day long, but is was the worst in the morning, like morning sickness. I felt an emptiness in my throat/esophagus (not heartburn), raging hunger, my body felt like it was starving to death but I could only eat a very small amount 6-8 times a day. I didn’t want to eat because I was so nauseous, but I soon found that if I didn’t eat, I would vomit so I had to force through the nausea to eat in order to prevent that from happening.
I took many trips to the bathroom (6-8 a day) and often during the night. I had no energy at all, brain fog (which I didn’t realize I had until it lifted a couple days into the gluten-free diet). Terrible mood, I was crabby for no reason at all other than feeling like I had the stomach flu 24/7. Mine was slow weight loss, about 35 pounds over the course of 14 years but even with 2 pregnancies, as of November 2010, I was 95 pounds. Very, very minor psoriasis and virtually no vitamin D or B-12 in my body.
My one “mystery” that no one has been able to give me answers to is my gastroparesis diagnosis. I have read reports that celiac can cause gastropar and I have NONE of the other issues that cause it. I have found many people that have both but no hard evidence. Perhaps a question for Dr. Vikki Petersen?
I finally found a holistic doctor who listened to me and ran lots and lots of tests. I had basically NO vitamin D in my body and was put on 50,000 IU’ a day to try to get it back up along with Enzymes, probiotics and GI supports.
Almost one year later I have never been this healthy and have helped 3 more people with severe issues find complete resolution of symptoms on a GF diet and directed them to your site. You are doing great things for the gluten free world!!!!
And that is why we do what we do.
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