I have quite a busy week ahead of me, my little one is getting ready to turn 4 (sniff) at the end of this month and I have some gluten-free, dairy-free, egg-free, refined sugar-free (and synthetic dye-free) Batman cupcakes to try and figure out how to make!
Where’s that magic wand when I need it??
Zucchini and Yellow Squash “Pasta” with Pomodoro Sauce (Karina has a beautiful tutorial on how to make zucchini pasta over at Gluten Free Goddess), Grilled Veggie Lentil Salad (any leftovers of this salad will be great for lunch!)
Baked Salmon, Garden Fresh Sliced Tomatoes with S&P, Green Beans in a White Wine Cream Sauce with Almonds (I will use coconut oil instead of butter and canned coconut milk instead of cream)
Grilled Lamb Chops and Vegetable Kabobs (I will use quinoa instead of couscous), Green Salad
Green Goddess Burgers (recipe coming soon), Leftover Salads from the week
I read some great articles this week and thought you might enjoy reading them as well:
Gluten Free Diet Benefits Relatives of Patients with Celiac Disease you will first need to register (it’s free) in order to read this article
The next article was of particular interest to me given that my oldest son had a positive celiac panel (he was positive for EmA and tTG) and a negative intestinal biopsy (his GI took 9 tissue samples). We also did the celiac gene test for Sam and he came back positive for one copy of DQ8 (which, through process of elimination, means I have one copy of DQ8 as well since my youngest son does not carry either gene for celiac disease, DQ2 or DQ8).
I know there is a lot of debate in the scientific community as to what the “appropriate” next step should be in cases like Sam’s and sadly, the vast majority of physicians will simply say, “you don’t have celiac disease and therefore you can continue eating gluten. Come back and see me when you get sicker.”
If I have ever tried to get one point across in my blog, it’s this: celiac disease is a master chameleon. Why do some children get very sick, so very early in life? Why do some people (like me), develop celiac disease early in life yet don’t find out about it (because they don’t “feel” sick) until they are diagnosed with another serious condition(s) many decades later?
Anyone who has been diagnosed with celiac will most likely tell you that they would give their left foot in order to have been given the chance for an early diagnosis, before all hell breaks loose in the health department (at least I know I would), and I really just don’t get why we make this diagnosis so damn difficult. Maybe Sam doesn’t have full-blown celiac disease yet…and ya know what? He never will if I have anything to say about it.
Incoming search terms:
- low adherence to biopsy guidelines affects celiac disease diagnosis in the united states (1)